Hope Is a Battlefield: The Year in Review
*Note: If you would like to donate to Rett Syndrome gene therapy research in honor of JJ this holiday season, please click here . It...
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Is "Inspiring" A Bad Word When It Comes To My Daughter?
In the world of disabilities, the word inspiring can be quite controversial because many people with disabilities have negative...
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Guest Post: Poems Written By JJ and Her Sister
I have the honor of presenting a guest post today from not one, but two guests: my oldest and youngest daughters. For your reading...
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Anxiety: Why Special Needs Parents Feel It So Intensely
If, like me, you are one of the forty million Americans who experience anxiety, you know what it feels like to truly worry. I’m talking...
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Unrelatability: Why Parents Like Me Feel They Don't Fit In
I am one of the primary caregivers for my six-year-old daughter, JJ, who has Rett Syndrome. Rett is a progressive neurodevelopmental...
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My Daughter: Beautiful, Complicated, and Imperfectly Perfect
Though she is present in every essay I write, I have yet to describe my youngest daughter in all of her beautiful, complicated glory. My...
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