A Year Filled with Hope: What The Last Twelve Months Brought for My Daughter and The Rett Community
December is a time for reflection. And as I look back over the past twelve months, I feel like celebrating a time unlike any other in the...
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A BLOG FOR PARENTS OF CHILDREN WITH DIFFERENCES, DISABILITIES, AND DIAGNOSES
The Miracle of Language
Note: This essay was a finalist for the Women on Writing Creative Nonfiction Contest. I have loved languages for most of my life. In...
My List of Hopeful Things: Part III
I have chosen to release my list of hopeful things in several installments. The first and second parts describe the positive...
My List of Hopeful Things: Part II
A few weeks ago, I posted the first installment of my list of hopeful things. It is meant for everyone to enjoy, but particularly...
For Newly Diagnosed Families: My List of Hopeful Things
When we first learned that my youngest daughter, JJ, had Rett Syndrome, I felt like I had stepped into a nightmare world. I gathered...
Strength: The different ways special needs parents show how strong they are
“I don’t know how you do it.” “I can’t imagine.” “Your child is so lucky to have you.” “You’re so strong.” As parents of children with...
Happy Ends: How we define a happy end for ourselves, our child, and our family
I am in a writing group with three other women. The genres we prefer are very different, but our stories have one thing in common: They...
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