I am the primary caregiver to my seven-year-old daughter, JJ, who has Rett Syndrome. I have watched Rett take away her independent steps, hand use, words, and much of her swallowing ability. Recently, it has even begun to curve her little spine. At first, when her losses were coming fast and furious, I only felt the negatives—the anger, grief, unending terror, and bottomless heartache. It has taken many years, but happiness, contentment—even flashes of joy—have now reentered

In the world of medical and disability parenting, sources of trauma abound. There are, of course, the terrible things that can happen to...

If, like me, you are one of the forty million Americans who experience anxiety, you know what it feels like to truly worry. I’m talking...

Though she is present in every essay I write, I have yet to describe my youngest daughter in all of her beautiful, complicated glory. My...