For medical parents, the contrast between advice and support—two very distinct means of communication—can be stark. We often receive well-meaning advice, when what we really need is to simply feel seen, heard, and respected in a world that is often not built for us or our children. It is extremely valuable for us to differentiate between the two and correctly identify which one we seek in any given moment. It can mean the difference between finding the fuel to get through a t

Like many life altering events or experiences, parenting a child with disabilities and medical complexities can profoundly impact one’s spiritual beliefs. I recently listened to an episode of the Rare Life podcast during which host Madeline Cheney dove into this topic by asking three mothers of children with rare diseases to explain how their parenting journeys have changed their religious and spiritual beliefs. As you might imagine, responses varied greatly. While one mother

Average engagement time. Engaged sessions per user. New users. Returning users. Tears blurred my vision as I looked at the Google...

Over time, our society has made great strides when it comes to diversity and inclusion. There are now groups of marginalized and...